Where to Start

Where to Start' is a warm, accessible, and beautifully written guide for Nigerian (and African) parents raising a child with sickle cell disease (SCD). Combining real-life stories, culturally relevant advice, and medically reviewed information, this book helps parents navigate diagnosis, care routines, pain crises, emotional wellness, and advocacy. Full of empathy, hope, and practical tips - from meals and daily routines to talking with teachers and doctors - it's a companion for every stage of the journey.

Written by Ameh Ujah, a parent and advocate, Where to Start offers reassurance and tools to help your child thrive and your family stay strong. An essential guide for any parent, caregiver, or ally of a sickle cell warrior.